[1]
WHO: The World Health Organization quality of life assessment (WHOQOL):
position paper from the World Health Organization. Soc. Sci. Med.,
1995:41, 1403-1409.
[2]
Michałowicz R.: Mózgowe porażenie dziecięce. PZWL, Warszawa 2001.
[3]
Winter S., Autry A., Boyle C. et al.: Trends in the prevalence of cerebral
palsy in a population-based study. Pediatrics, 2002:110, 1220-1225.
[4]
Arpino C., Curatolo P., Stazi M.A. et al.: Differing risk factors for cerebral
palsy in the presence of mental retardation and epilepsy. J. Child Neurol.,
1999:14, 151.
[5]
Jakimowicz W.: Neurologia Kliniczna w zarysie. PZWL, Warszawa 1987.
[6]
Sadowska L.: Neurokinezjologiczna diagnostyka i terapia dzieci z zaburzeniami
rozwoju psychoruchowego. Wydawnictwa AWF, Wrocław 2001.
[7]
McCarthy M.L., Mac Kenzie E.J., Durbin D.R. et al.: The Pediatric Quality
of Life Inventory: An Evaluation of Its Reliability and Validity for Children
With Traumatic Brain Injury. Arch. Phys. Med. Rehabil., 2005:86,
1901-1909.
[8]
Msall M.E., DiGaudio K., Duffy L.C et al.: WeeFIM Normative Sample of an
Instrument for Tracking Functional Independence in Children. Clin. Ped.,
1994, 431-438.
[9]
Azaula M., Msall M.E., Buck G. et al.: Measuring Funcional Status and
Family Support in Older School-Aged Children With Cerebral Palsy:
Comparison of Three Instruments. Arch. Phys. Med. Rehabil., 2000:8,
307-311.
[10]
Pietrzak S., Jóźwiak M.: Subiektywne i obiektywne skale rozwoju dziecka.
Ortopedia Traumatologia Rehabilitacja, 2001:3, 4, 487-489.
[11]
Russel D.J., Rosenbaum P.L., Avery L.M. et al.: Gross Motor Function
Measure (GMFM-66 & GMFM-88) User’s Manual. Mac Keith Press,
London 2002.
[12]
Russel D.J.: Improved Scaling of the Gross Motor Function Measure for
Children With Cerebral Palsy: Evidence of Reliability and Validity. Physical
Therapy, 2000:80, 9, 873-885.
[13]
Russel D., Gowland C., Rosenbaum P. et al.: GMFM in Down Syndrome:
Project Report. www.canchild.ca/Default.aspx?tabid=143-102k
[14]
Msall M.E.: Functional assessment in neurodevelopmental disabilities.
[w:] Capute A., Accardo P.: Developmental diabilities in infancy and Childchood.
2nd ed. Baltimore: P.H. Brookers Publishing 1996,371-392.
[15]
Varni J.W. et al.: The PedsQL in pediatric rheumatology: reliability, validity
and responsiveness of the Pediatric Quality of Life Inventory Generic
Core Scales and Rheumatology Module. Arthritis Rheum., 2002:66,
714-725.
[16]
Varni J.W. et al.: The PedsQL in type 1 and 2 diabetes: reliability and
validity of the pediatric quality of life inventory generic core scales and
type 1 diabetes module. Diabetes Care, 2003:26, 631-637.
[17]
Varni J.W. et al.: The PedsQL in pediatric asthma: reliability and validity
of the pediatric Quality of Life Inventory generic core scales and asthma
module. J. Behav. Med., 2004:27, 297-318.
[18]
Powers S.W. et al.: Quality of life in pediatric migraine: characterization of
age-related effects using PedsQL 4.0. Cephalalgia, 2004:24, 120-127.
[19]
Bastiaansen M. et al.: Measuring quality of life in children referred for
psychiatric problems: psychometric properties of the PedsQL 4.0 generic
core scales.Qual Life Res. 2004:13, 489-495.
[20]
Ravens-Sieberer U., Gosch A., Rajmil L. et al.: KIDSCREEN-52 quality-oflife
measure for children and adolescents. Expert Rev. Pharmacoeconomics
Outcomes Res., 2005:5, 353-364.
[21]
Detmar S.B., Bruil J., Ravens-Siberer U. et al.: The use of focus groups in
the development of the KIDSCREEN HRQL questionnaire. Qual. Life Res.,
2006:15, 1345-1353.
[22]
Albrecht G.L., Devlieger P.J.: The disability paradox: high quality of life
against all odds. Soc. Sci. Med., 1999:48, 977-988.
[23]
United Nations. Convention on the rights of the child. United Nations,
New York 1989.
[24]
United Nations. Convention on the rights of persons with disabilities.
Resolution 60/232. United Nations, New York 2006.
[25]
Dickinsen H.O., Parkinson K.N., Ravens-Sieberer U. et al.: Self-reported
guality of life of 8-12-year-old children with cerebral palsy: a cross-sectional
European study. The Lancet, 2007:369, 2172-2178.